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Lalsace
@lalsace.fr
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59 minutes
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Andlau. « Ma peau est aussi fragile que les ailes d’un papillon » : le combat de Clovis, 13 ans, ...
À Andlau, le jeune Clovis, âgé de 13 ans, témoigne de son quotidien difficile face à l'épidermolyse bulleuse. Cette maladie génétique rare, surnommée la maladie de l'enfant papillon, rend sa...
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