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Toyokeizai
@toyokeizai.net
·
2 hours
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〈日常も職業も奪う〉医師すら知らない難病「ジストニア」の恐怖 見えづらい異変・・・情報限られ、診療に立ちはだかる壁
ある日突然、思いどおりに体が動かなくなる――ジストニアは、脳の異常な信号が引き起こす難病です。音楽家などに多く、患者や医師の認知度も低いため、適切な診断や治療にたどり着けない例が少なくありません。記者も体験した難病の過酷な実態に迫ります。
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