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Yahoo
@yahoo.co.jp · 1 hour

「毎日痛くてかゆくて、『なんで私だけ』って…」 認知度の低い難病と向き合う30歳女性 持病の発信を続ける理由(Hint-Pot)

「毎日痛くてかゆくて、『なんで私だけ』って…」 認知度の低い難病と向き合う30歳女性 持病の発信を続ける理由(Hint-Pot)
ラジオパーソナリティの梅津真里奈さんは、指定難病「表皮水疱症」と闘いながら、SNSで自身の経験を発信しています。この病気の認知度が低いことに危機感を抱き、コロナ禍を機に啓蒙活動をスタート。毎日続く痛みやかゆみと向き合いながらも、支えてくれる人々のために、病気と生きる日々や希望について発信を続けています。(Hint-Pot)
Read more News.yahoo.co.jp

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