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Dime
@dime.jp
·
2 hours
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本日発売!難病「先天性ミオパチー」と闘う娘との日々を綴った星野真里さんの書き下ろしエッセイ「さいごにきみと笑うのだ 」|@DIME アットダイム
本日発売された星野真里さんの書き下ろしエッセイ「さいごにきみと笑うのだ 」は、難病「先天性ミオパチー」と闘う娘・ふうかさんとの日々を綴ったものです。ふうかさんは筋緊張低下の国指定難病を患い、電動車椅子で生活しています。本書は、困難な状況の中でも前向きに生きる家族の姿を描いています。
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